San Jose, CA

I knew there was Down Sydrome but Prader-Willi Syndrome is new to me. What exactly is Prader-Willi Syndrome and is there support for parents in San Jose, California? Thankfully the answer is yes!

Prader-Willi Syndrome is a genetic disorder that causes prominent foreheads, almond-shaped eyes, poor sucking and swallowing reflexes, small extremities and cryptorchidism in babies.

I couldn’t imagine what a parent goes through with a child that has Prader-Willi Syndrome but there is support in the San Jose community. The Prader-Willi Association offers information on current events, research, support, and offers after hours support.

Bill Wilson Center
The Bill Wilson Center in Santa Clara offers support to parents and children in Santa Clara County. The Bill Wilson Center offers individuals or groups grief support for adults, children and families experience life-threatening illnesses.

San Jose Family And Children Services
You can find out more about the San Jose Family and Children Services here

Compassionate Friends
Compassionate Friends is a group in Cupertino, Calfiornia that offers a place for parents to talk and be listened to.

If you’re unable to find a group that you like, think about starting one in your area. It can be as large as an organization or as small as a coffee group. What you will be providing is a grand thing. People just want a place to talk, gather resources, share resources, and connect to other people who are dealing with the same thing.

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